Posts Tagged ‘God’

on crying in front of people

Monday, October 19th, 2009

I generally try not to make a habit of taking my clothes off in public. But that’s what seems to have happened yesterday.

I mean, swimming was bad enough on Saturday (I said to some friends afterwords, “So why is it that if we dressed like this in any other public venue in any other context we would most definitely be deemed as, at least vaguely, offensive, but put a huge vat of water in the middle of us and push us in, and suddenly it’s ok??), and I at least try to forget when my skirt fell off during coffee time after church a few weeks ago, but bursting into tears in front of a large group of people from my church yesterday was not in my plan. It feels a bit like taking one’s clothes off to testify to something personal.

It was actually a beautiful communion service. And I suppose, I was the one who said:

I heard or was told somewhere along the line that there can be no true communication between two people, no real friendship, no love, familial or otherwise, no meaningful interaction with God, and no honesty without mutual vulnerability that stems from trust.

but in a way I’d made myself really very vulnerable over the last week, and I had been feeling it since then. When becoming vulnerable, I usually get scared of ending with the consequence of regret, loss, offense and error.

What I said that made me cry was very short, very simple and didn’t nearly express what I wanted to say (I still can’t seem to do that). I said, to a group of people from my church who contained some of my dearest friends, some slightly less close friends, some complete strangers, and some empty spaces where other people who could/should have been there but weren’t, “I lost my first family. But God brought me here and gave me you. You are my family.”

I didn’t get to say why that meant so much or how it happened, and I don’t know whether or not I feel better for saying it, but I was surprised by the response. Two friends approached to put their arms around me as I cried, a man I am not close to gave me a hug after the service, a woman I had never spoken to before told me that I was very brave, another friend kissed me on the forehead and served me the communion glass, and one of my oldest friends put a hand on my arm and said something I can’t quite remember except that it touched me.

I’ve made pretty clear that to me family is a bigger thing than the one that lives and moves inside the four walls we inhabit. It overwhelms me that after nearly 15 years, I still have this second family and they haven’t kicked me out yet. I need my family.

And I’m so afraid of losing it again.

rip van winkle

Tuesday, August 18th, 2009

it’s a strange thing.

it’s a strange thing to wake up one morning after twelve years in a practical drug induced coma and find that nothing hurts anymore. Just that quickly.

No, not a coma, because there was still life there, just an altered one. More of a zombie, than a coma. It’s a complex explanation, what I mean by that, but it doesn’t feel that urgent to elucidate right now. Suddenly, I don’t feel that I have to.

My friends haven’t even relised. People are still acting towards me as if I worry, as if I’m anxious or sad. They say “oh don’t worry… blah blah blah” and pass on pieces of advice to help me through the crisis. . . when I’m no longer actually in one. They mean well. But’s it’s clear that my old state of anxiety made others anxious, and I am sorry to have been a burden. I don’t know who I am yet, myself, so I don’t say anything and I smile and nod. . . and wait until either I’m better at explaining or anybody wants to know enough to ask me something about it.

I have very little memory other than things that I have written either on my blogs or in my journals, and I don’t necessarily currently want to review.

Recently, after I woke up, I got curious as to what had happened, so I went to my doctor and asked to be made a print out of every perscription drug that I had been perscribed since 1997 and the date ranges that I was on each. This is a small charge, but my right to ask for under the Data Protection Act.

The print out came to 50 pages.

450 individual perscriptions, some repeated for years, some one offs.

I counted 38 oral medications, 22 topical skin allergy treatments, 20 individual perscriptions for 7 different antibiotics and 6 different anti depressants perscribed over 12 years (one of which, I had been on for several years and at several different times, but is now removed from the market, because patients started dying of liver failure while being on it).

Some of the drugs were as benign as moisturising lotion and ibuprofen, others as strong as pethidine, immunosupressants, an anti-narcoleptic and 3 different antipsychotics (percribed to me not for mental health reasons, but because they were known to have helped in various MS symptom treatment, like pain and virtigo. And no, they didn’t help me.) just to name a few.

Plus the list did not include any medication that I had been given during my 4 or 5 lengthy stays in hospital or scripts written directly by my consultants.

I have researched the side effects of each one and looked at the number of various ‘drug cocktails’ I was on and also tried to align what I was taking when different things happened in my life, and the pattern is shocking. I feel like I can be less hard on myself for having achieved so little over that time. I am aware that several of the things that I was on, and combinations thereof, nearly killed me. Litteraly, not figuratively. It feels a bit traumatising to realise that, and I’m not fully able to think about that yet.

This morning I sneezed and took an anti-histamine and my daily multivitamin. That was all I took. I’m ‘clean’.

I’ve weaned off of everything else, even the self injections.

It’s all out of my system and my brain and body has now got used to making and using it’s own chemicals again. (brains stop doing it for themselves after having it done for them after awhile.)

I feel good.

I haven’t had a panic attack since 18th of July, and I’m not even anxious about possibly having one anymore. I barely remember what it feels like. That doesn’t sound like a long time. But the difference is amazing!

I can pray again for the first time in a very long time. I won’t get into the spiritual side of all of this right now, but there is one. I don’t recognise myself, but I’m happy to wait… because for the first time in 12 years, I’m calm enough to do that. I’m hoping that I actually have another 12 to wait in.

It will be good to meet you all. . . again.

so whad’ya say?

Tuesday, August 11th, 2009

My faith story has been more of a “crawling towards the finish line, panting for water, clutching hold of whatever I’ve got left and trying not to drop it or get hit by a car” kind of experience rather than a “thunderbolt, zap, bang, Damascus Road, WOOHOO, Word from God” kind of “wow everything’s so different now” kind of experience. . .

. . . until about two weeks ago. But I kind of think that if I had met Jesus on the Damascus Road, it would have been a lot easier to talk about than what actually happened.

I just wanted to say that. That’s all for now, but I just thought I’d say that.

Could we start again, please?

Friday, January 23rd, 2009

I’ve always found the cross a difficult story to relate to. It is meant to be the centre of my faith, and it is, but . . . how do I relate to it. How could I? It feels so distant from anything I’ve ever known. And the whole idea of sacrifice is one I find dificult anyway. I think in all honesty, most people would say that they do. Accepting sacrifice, understanding sacrifice, and especially understanding sacrifice as a way to redemption. Most of the time I find it more overwhelming than freeing.

Redemption is something I have thought about a lot over this past year – redemption and how could it be possible, especially when it seems so far away, redemption and can i even think to hope of it, redemption and longing for it. Redemption and losing faith in it. I don’t just mean redemption in a spiritual sense, but a real physical, everyday, reach out and touch it sense. I’m one of those Christians who stubbornly can’t let go of the whole “we believe in life before death” concept. I just find it difficult to experience.

It’s usually me standing at the foot of the cross, and not understanding, being too human, too logical, too hurting right now to see anything further reaching. It’s me who can’t accept that this is all for everyone’s own good, especially mine. It’s me who finds it hard to cope with the messyness of it all. I’m the one left saying “But where is he?” and when they answer “He’s on the cross.” I’m the one who is left finding the sacrifice difficult to accept. I know that’s not what he meant for, but . . . I’m too shortsighted, too anxious, too human.

“. . . This was unexpected,
What do I do now?
Could we start again please?
I’ve been very hopeful, so far.
Now for the first time, I think we’re going wrong.
Hurry up and tell me,
This is just a dream.
Oh could we start again please?

I think you’ve made your point now.
You’ve even gone a bit too far to get the message home.
Before it gets too frightening,
We ought to call a vote,
So could we start again please?”

– from Jesus Christ Superstar

A Grief Observed

Tuesday, January 20th, 2009

“No one ever told me that grief felt so like fear. I am not afraid, but the sensation is like being afraid. The same fluttering in the stomach, the same restlessness, the yawning. I keep on swallowing. At other times it feels like being mildly drunk, or concussed. There is a sort of invisible blanket between the world and me. . .”

C. S. Lewis begins his notebook on grief this way. He wrote these journals on the subject, not as a detatched academic exercise, but as a way of helping him to cope after his wife’s death from cancer. I read this small book for the first time the year I was diagnosed with MS. It wasn’t a person who had died in my life, but my own life and future as I had always imagined it, as I had always planned and hoped for it. So I grieved, I reordered my expectations, I found new hope for a different kind of future, whatever that might be, and I came to some kind of acceptance. I was ready to face a different kind of future. “Your will be done”. I trusted that back then. I trusted that His will, was a good one. I hadn’t made enough mistakes to have been discouraged yet.

I didn’t relise that grief, once accepted, does not always stay accepted. What I mean is not that the original grief becomes ‘unaccepted’ once again, but that the original grief will always change a bit every so often, a day, a month, a year, or whatever, so that the new grief must go through the same process as the first one did in order to come to the same acceptance of it. That’s pretty exhausting.

For example, when my father died, I grieved, I went through the stages, I came to acceptance. But that grief changed. My loss of my father was a different loss when I was 21, newly married and an immigrant in a new country than it is today when I’m more than a decade older and I know he will never sit in the living room of my house playing with his grand-daughter. I didn’t have those things yet, so I did not experience the loss of him not being a part of them. But now I do have them, and his absence is made real in a way that it could not have been the first time I grieved for him. Does that mean that I must go through the whole grief process again each time something new comes into my life for him to not be a part of?

And what about MS? I might have been able to appropriately grieve for my future as I had imagined it when I was 20, but now must I go through the list of more concrete things to wrestle with? So today I may grieve for the mountains I will never climb (both physical and symbolic), but when I come to accept that and my body changes, deteriorates, further yet again, must I then grieve tomorrow for the roads I will never walk the length of, and then the day after that for the things I will never see at all? Wouldn’t it be nice if we could get it all over and done with and grieved for in one go, complete and totally accepted? Perhaps those of stronger faith have been able to do that. Perhaps that is how I was able to accept things so much faster in the past? I was younger, more trusting?

But I’ve been collecting my losses over the years, and have never been quite sure what to do with them. They haven’t spaced themselves out so neatly and tidily as to allow me to confront them one by one, and I’m tired and a bit short tempered with it all.

And what about faith in the midst of it all? Yes, I know it is there, but right now (and much of the time) I am more likely to relate to what Lewis says near the beginning of his book ” Talk to me about the truth of religion and I’ll listen gladly. Talk to me about the duty of religion and I’ll listen submissively. But don’t come talking to me about the consolations of religion or I shall suspect that you don’t understand.”

I doubt Lewis had any intention as he wrote of ever having his thoughts published (I still haven’t decided about this post). How could he be so brutally honest if he had ever considered sharing his thoughts with the rest of the world? How could anyone not remain academically detached in order to speak publicly of such things (I am being candid now, because I doubt that I will hit the ‘publish’ button)? Honesty with the rest of the world is difficult. Honesty reminds us that God is there and knows our shame, our shame at being human, anyway. We know that he knows us completely, but it (our grief, our deeds, our shame, our failings, our humanity) still somehow remains private and even a fiction until we share it. Perhaps that’s why we write these confounded blogs. Somehow, though we must believe He is not, God always seems to remain stuck there in our heads. Somehow, though we are aware that we only need confession to Him and Him alone, it never really becomes real until our darkest wrestlings are made public. Until we are made public, and forgiven and loved. (Yes, I am aware this doesn’t stand up theologically, but on a different level, perhaps it does emotionally?) Perhaps that is why He didn’t stop at Adam and made all of these other people as well, even though, on the whole it made things so much more complicated and messy. Perhaps in order to grieve, to accept and to return to joy, one must find and recognise and trust where God’s Spirit walks on earth now. One must remove him from the cofines of our own heads?

I don’t know. I’m only writing a notebook. Just like C. S. Lewis. And tomorrow perhaps I won’t be lost in my head anymore because perhaps I will have indeed hit ‘publish’ and told you. and perhaps I won’t because I will realise that one way or the other, ‘this too shall pass’ and it probably doesn’t matter anyway because something else will happen to take the place of these thinkings.