Posts Tagged ‘hope’

on Orpheus and patience

Thursday, March 11th, 2010

I’ve not studied these poems, the Sonnets to Orpheus. Not in any official way, I have just read them. And I have no literary criticism of worth (Rilke didn’t believe in the worth of literary criticism anyway), or at least I have none that would be wholly approved of by the academics. I just know when an image appeals to me. And these images appeal to me. The particular things that strike a chord with me in this particular poem are the first stanza and the first sentence of the final stanza.

Sonnets to Orpheus Part 2, XII by Rainer Maria Rilke

Want the change. Be inspired by the flame
where everything shines as it disappears.
The artist, when sketching, loves nothing so much
as the curve of the body as it turns away.

What locks itself in sameness has congealed.
Is it safer to be gray and numb?
What turns hard becomes rigid
and is easily shattered.

Pour yourself out like a fountain.
Flow into the knowledge that what you are seeking
finishes often at the start, and, with ending, begins.

Every happiness is the child of a separation
it did not think it could survive. And Daphne, becoming a laurel,
dares you to become the wind.

Do you know the story of Orpheus? At least skim through the link if you don’t (don’t bother looking it up on wikipedia, it’s too cold, academic and detached) and try to imagine the utter despair of winning back your love, your life, from the grip of Hades then losing everything in an instant through the accident of your own impatient desires, because you couldn’t wait.

There is much more than a lesson in romance here. I suppose it applies to all the passions of our lives. We try too hard, we can’t wait, we grasp . . . and we lose.

The first stanza is full of the depth of loss. But within that an urging to find some kind of beauty and inspiration through it.

The artist, when sketching, loves nothing so much
as the curve of the body as it turns away.

“as it turns away.”

Then in the last verse with:

Every happiness is the child of a separation
it did not think it could survive.

Is this a line of hope in the midst of utter tragedy?

Want the change.”

“What locks itself in sameness has congealed.”

“Flow into the knowledge that what you are seeking
finishes often at the start, and, with ending, begins.”

Maybe it’s just me.

the life transplant – part 3

Wednesday, February 24th, 2010

And then. . .

. . . The joy of life.

hope

Tuesday, September 29th, 2009

I just wanted to point you all to a link to a friend’s blog. Although, in many ways, our families are very different, I couldn’t express these particular sentiments better myself.

I worry a lot about my Flower and her frustrations and what she may have to go through in her life and how I will manage to go through them with her. Her uncertainties are my uncertainties. Her future is my future. And likewise, my struggles are hers.

So like my friend’s little boy, I know Flower needs me to hope. She can’t do it for herself. Not without me. Not yet anyway.

click here (oh, and by the way, she said I could link her.)

rip van winkle

Tuesday, August 18th, 2009

it’s a strange thing.

it’s a strange thing to wake up one morning after twelve years in a practical drug induced coma and find that nothing hurts anymore. Just that quickly.

No, not a coma, because there was still life there, just an altered one. More of a zombie, than a coma. It’s a complex explanation, what I mean by that, but it doesn’t feel that urgent to elucidate right now. Suddenly, I don’t feel that I have to.

My friends haven’t even relised. People are still acting towards me as if I worry, as if I’m anxious or sad. They say “oh don’t worry… blah blah blah” and pass on pieces of advice to help me through the crisis. . . when I’m no longer actually in one. They mean well. But’s it’s clear that my old state of anxiety made others anxious, and I am sorry to have been a burden. I don’t know who I am yet, myself, so I don’t say anything and I smile and nod. . . and wait until either I’m better at explaining or anybody wants to know enough to ask me something about it.

I have very little memory other than things that I have written either on my blogs or in my journals, and I don’t necessarily currently want to review.

Recently, after I woke up, I got curious as to what had happened, so I went to my doctor and asked to be made a print out of every perscription drug that I had been perscribed since 1997 and the date ranges that I was on each. This is a small charge, but my right to ask for under the Data Protection Act.

The print out came to 50 pages.

450 individual perscriptions, some repeated for years, some one offs.

I counted 38 oral medications, 22 topical skin allergy treatments, 20 individual perscriptions for 7 different antibiotics and 6 different anti depressants perscribed over 12 years (one of which, I had been on for several years and at several different times, but is now removed from the market, because patients started dying of liver failure while being on it).

Some of the drugs were as benign as moisturising lotion and ibuprofen, others as strong as pethidine, immunosupressants, an anti-narcoleptic and 3 different antipsychotics (percribed to me not for mental health reasons, but because they were known to have helped in various MS symptom treatment, like pain and virtigo. And no, they didn’t help me.) just to name a few.

Plus the list did not include any medication that I had been given during my 4 or 5 lengthy stays in hospital or scripts written directly by my consultants.

I have researched the side effects of each one and looked at the number of various ‘drug cocktails’ I was on and also tried to align what I was taking when different things happened in my life, and the pattern is shocking. I feel like I can be less hard on myself for having achieved so little over that time. I am aware that several of the things that I was on, and combinations thereof, nearly killed me. Litteraly, not figuratively. It feels a bit traumatising to realise that, and I’m not fully able to think about that yet.

This morning I sneezed and took an anti-histamine and my daily multivitamin. That was all I took. I’m ‘clean’.

I’ve weaned off of everything else, even the self injections.

It’s all out of my system and my brain and body has now got used to making and using it’s own chemicals again. (brains stop doing it for themselves after having it done for them after awhile.)

I feel good.

I haven’t had a panic attack since 18th of July, and I’m not even anxious about possibly having one anymore. I barely remember what it feels like. That doesn’t sound like a long time. But the difference is amazing!

I can pray again for the first time in a very long time. I won’t get into the spiritual side of all of this right now, but there is one. I don’t recognise myself, but I’m happy to wait… because for the first time in 12 years, I’m calm enough to do that. I’m hoping that I actually have another 12 to wait in.

It will be good to meet you all. . . again.

so whad’ya say?

Tuesday, August 11th, 2009

My faith story has been more of a “crawling towards the finish line, panting for water, clutching hold of whatever I’ve got left and trying not to drop it or get hit by a car” kind of experience rather than a “thunderbolt, zap, bang, Damascus Road, WOOHOO, Word from God” kind of “wow everything’s so different now” kind of experience. . .

. . . until about two weeks ago. But I kind of think that if I had met Jesus on the Damascus Road, it would have been a lot easier to talk about than what actually happened.

I just wanted to say that. That’s all for now, but I just thought I’d say that.

through the gate

Sunday, August 9th, 2009

I feel like i’ve been gone a long time. I feel that I have not spoken to you in an age, dear reader, though it has been only days, not even a week. Though when so much can happen in one afternoon (not today, nor yesterday, but not long ago), it feels that you have not seen others in a long, long time. if ever before. and it will require new eyes, in both directions, to see at all.

I think that I have been gone longer than anyone could have known. For 17 years, I have been gone, but just as the wrongly accused is released from prison late in life, one can not walk free as the same person who was arrested in their youth.

It is good to be back, to be here. . . and to know the place for the first time.

. . . through the unknown remembered gate
when the last of earth left to discover
Is that which was the beginning. . .

just a thought

Thursday, May 21st, 2009

in this life we make choices. we make choices based on hope. sometimes a hope for something better, sometimes simply hope that we’ve made a good choice. we then live with those choices in whatever way we find ourselves able to do that.

some people never live with their choices. they refuse to and stand against the world in a blockade of denial.

other choices are made for us. in that case we either have to find a way of living with it, or find a way of changing it. otherwise, we get stuck behind the blockade again.

(by the way, Hamlet is my favourite Shakespearian play.)

I want to teach my daughter [how to] to make [good] choices. I also want to give her a way of living with [accepting] the reality of the world that we live in.

they say that the best way to teach children is to model the behaviour.

Could we start again, please?

Friday, January 23rd, 2009

I’ve always found the cross a difficult story to relate to. It is meant to be the centre of my faith, and it is, but . . . how do I relate to it. How could I? It feels so distant from anything I’ve ever known. And the whole idea of sacrifice is one I find dificult anyway. I think in all honesty, most people would say that they do. Accepting sacrifice, understanding sacrifice, and especially understanding sacrifice as a way to redemption. Most of the time I find it more overwhelming than freeing.

Redemption is something I have thought about a lot over this past year – redemption and how could it be possible, especially when it seems so far away, redemption and can i even think to hope of it, redemption and longing for it. Redemption and losing faith in it. I don’t just mean redemption in a spiritual sense, but a real physical, everyday, reach out and touch it sense. I’m one of those Christians who stubbornly can’t let go of the whole “we believe in life before death” concept. I just find it difficult to experience.

It’s usually me standing at the foot of the cross, and not understanding, being too human, too logical, too hurting right now to see anything further reaching. It’s me who can’t accept that this is all for everyone’s own good, especially mine. It’s me who finds it hard to cope with the messyness of it all. I’m the one left saying “But where is he?” and when they answer “He’s on the cross.” I’m the one who is left finding the sacrifice difficult to accept. I know that’s not what he meant for, but . . . I’m too shortsighted, too anxious, too human.

“. . . This was unexpected,
What do I do now?
Could we start again please?
I’ve been very hopeful, so far.
Now for the first time, I think we’re going wrong.
Hurry up and tell me,
This is just a dream.
Oh could we start again please?

I think you’ve made your point now.
You’ve even gone a bit too far to get the message home.
Before it gets too frightening,
We ought to call a vote,
So could we start again please?”

– from Jesus Christ Superstar

A Grief Observed

Tuesday, January 20th, 2009

“No one ever told me that grief felt so like fear. I am not afraid, but the sensation is like being afraid. The same fluttering in the stomach, the same restlessness, the yawning. I keep on swallowing. At other times it feels like being mildly drunk, or concussed. There is a sort of invisible blanket between the world and me. . .”

C. S. Lewis begins his notebook on grief this way. He wrote these journals on the subject, not as a detatched academic exercise, but as a way of helping him to cope after his wife’s death from cancer. I read this small book for the first time the year I was diagnosed with MS. It wasn’t a person who had died in my life, but my own life and future as I had always imagined it, as I had always planned and hoped for it. So I grieved, I reordered my expectations, I found new hope for a different kind of future, whatever that might be, and I came to some kind of acceptance. I was ready to face a different kind of future. “Your will be done”. I trusted that back then. I trusted that His will, was a good one. I hadn’t made enough mistakes to have been discouraged yet.

I didn’t relise that grief, once accepted, does not always stay accepted. What I mean is not that the original grief becomes ‘unaccepted’ once again, but that the original grief will always change a bit every so often, a day, a month, a year, or whatever, so that the new grief must go through the same process as the first one did in order to come to the same acceptance of it. That’s pretty exhausting.

For example, when my father died, I grieved, I went through the stages, I came to acceptance. But that grief changed. My loss of my father was a different loss when I was 21, newly married and an immigrant in a new country than it is today when I’m more than a decade older and I know he will never sit in the living room of my house playing with his grand-daughter. I didn’t have those things yet, so I did not experience the loss of him not being a part of them. But now I do have them, and his absence is made real in a way that it could not have been the first time I grieved for him. Does that mean that I must go through the whole grief process again each time something new comes into my life for him to not be a part of?

And what about MS? I might have been able to appropriately grieve for my future as I had imagined it when I was 20, but now must I go through the list of more concrete things to wrestle with? So today I may grieve for the mountains I will never climb (both physical and symbolic), but when I come to accept that and my body changes, deteriorates, further yet again, must I then grieve tomorrow for the roads I will never walk the length of, and then the day after that for the things I will never see at all? Wouldn’t it be nice if we could get it all over and done with and grieved for in one go, complete and totally accepted? Perhaps those of stronger faith have been able to do that. Perhaps that is how I was able to accept things so much faster in the past? I was younger, more trusting?

But I’ve been collecting my losses over the years, and have never been quite sure what to do with them. They haven’t spaced themselves out so neatly and tidily as to allow me to confront them one by one, and I’m tired and a bit short tempered with it all.

And what about faith in the midst of it all? Yes, I know it is there, but right now (and much of the time) I am more likely to relate to what Lewis says near the beginning of his book ” Talk to me about the truth of religion and I’ll listen gladly. Talk to me about the duty of religion and I’ll listen submissively. But don’t come talking to me about the consolations of religion or I shall suspect that you don’t understand.”

I doubt Lewis had any intention as he wrote of ever having his thoughts published (I still haven’t decided about this post). How could he be so brutally honest if he had ever considered sharing his thoughts with the rest of the world? How could anyone not remain academically detached in order to speak publicly of such things (I am being candid now, because I doubt that I will hit the ‘publish’ button)? Honesty with the rest of the world is difficult. Honesty reminds us that God is there and knows our shame, our shame at being human, anyway. We know that he knows us completely, but it (our grief, our deeds, our shame, our failings, our humanity) still somehow remains private and even a fiction until we share it. Perhaps that’s why we write these confounded blogs. Somehow, though we must believe He is not, God always seems to remain stuck there in our heads. Somehow, though we are aware that we only need confession to Him and Him alone, it never really becomes real until our darkest wrestlings are made public. Until we are made public, and forgiven and loved. (Yes, I am aware this doesn’t stand up theologically, but on a different level, perhaps it does emotionally?) Perhaps that is why He didn’t stop at Adam and made all of these other people as well, even though, on the whole it made things so much more complicated and messy. Perhaps in order to grieve, to accept and to return to joy, one must find and recognise and trust where God’s Spirit walks on earth now. One must remove him from the cofines of our own heads?

I don’t know. I’m only writing a notebook. Just like C. S. Lewis. And tomorrow perhaps I won’t be lost in my head anymore because perhaps I will have indeed hit ‘publish’ and told you. and perhaps I won’t because I will realise that one way or the other, ‘this too shall pass’ and it probably doesn’t matter anyway because something else will happen to take the place of these thinkings.